The life journey of little Panagiotis - Raphael Glossiotis, who suffers from spinal muscular atrophy, begins in a few days, in Boston, United States, and at Boston Children's Hospital.
As announced by the Association for the Care of People with Neuromuscular Diseases, MDA Hellas, Friday, November 15, was set as the date of transfer and admission to Boston Children's Hospital - except unexpectedly as indicated in the announcement, based on data and estimates for course of developments. The average length of stay of an 18-month-old child is estimated at 2 to 3 months, based on the hospitalization of similar cases.
The same announcement mentions the total amount raised, which amounts to almost 3,7 million euros.
"With your emotional support, the total amount required for the transfer of Panagiotis-Raphael to Boston and the treatment of Zolgensma was completed and it was possible to set a date for transfer and admission to Boston Children's Hospital. From the communication with the hospital so far, the suggested date of admission to Boston Children's Hospital is, unexpectedly, November 15, 2019. We hope, with the information we have so far and assessing as much as possible the course of developments, that this date will be final "states in its announcement the MDA Hellas, which was posted on its facebook account.
According to the report of the campaign for Panagiotis-Raphael made by the Association, the amount of 27 euros was collected in about a month, from 09/2019/31 to 10/2019/3.681.100,15.
How the money will be spent
He adds that "after repeated efforts, there was an additional reduction in the total estimated cost of the hospital, as the cost will not be covered by the insurance company. The new estimate amounts to $ 2.787.325,66. This estimate includes the price of the medicine, the services provided and the remuneration of the medical staff. For the total cost, which will include the cost of transportation by private ambulance, purchase of necessary medical equipment that will need to have with him, accommodation in an apartment in Boston, transportation, as well as the treatments needed to improve and maintain it The patient's physical condition (physiotherapy, occupational therapy, speech therapy, hydrotherapy), any hospitalization or further hospital services that may occur and whatever else is needed, will be given a detailed account with the safe return of Panagiotis Raphael to Greece.
Concluding, the Association thanks the more than 100.000 donors who have embraced this effort.
Source: First Topic